Microcosms of Injustice Found Throughout Sickle Cell Disease
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In this program:
Dr. Campbell describes the inequities and injustices throughout the sickle cell community. He presents an example of a patient who almost died because she was not listened to. Physicians must listen to patients with sickle cell disease because their complaints may be a preceding symptom of severe complications.
Read Transcript
Dr. Campbell:
I just want to say that sickle cell disease is an example of a health condition where our patients are not heard, right. It's not the same as George Floyd which we, you know -- rest in peace. Police brutality needs to end absolutely. It's really an injustice. I can't really tell you how emotional I get when I heard that and what I saw. But I think what I've learned is these injustices, microcosms, you can have different microcosms of injustices in every field, in every aspect of our society. And in sickle cell, there are injustices, there are inequalities.
There are patients who are not heard or told they're not in pain. They're not heard when their health is going down the tubes clinically. And in some patients, they also say they cannot breathe when they have severe acute chest syndrome. I had a patient, she was telling a group of doctors that she couldn't breathe and they ignored her and she almost died.
So I think this is a testament. I think this story is telling us, is teaching us that as healthcare providers, if patients, regardless of color, come in and they are feeling something's wrong with them, we need to treat them. Regardless of the color of their skin, regardless of sexual orientation, regardless of age, regardless of gender, we need to listen to them. Because in sickle cell, if you have severe pain crisis, that can be a preceding symptom of severe complications in sickle cell disease. If you keep coming in, you go through the revolving door, no one's listening to you, it could be something more serious. We need to listen to our patients.
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