Advice From Mother of a Sickle Cell Warrior
Sickle cell disease patient advocate and care partner Carla Lewis shares advice about staying engaged and ways that she helped her son transition to adult care.
Different Disparities Displayed in Sickle Cell Care
Dr. Marwan Shaikh, hematology nurse practitioner Maya Bloomberg, and Carla Lewis discuss disparities that patients have experienced, biases that exist, and how sickle cell patients and advocates can continue to help in reducing care disparities.
Tips and Resources to Keep Track of SCD Health Information
Dr. Marwan Shaikh and hematology nurse practitioner Maya Bloomberg share ways to organize care aspects like sickle cell disease medications and financial resources.
Understanding Insurance for Sickle Cell Care
Sickle cell disease patient advocate Carla Lewis, hematology nurse practitioner Maya Bloomberg, and Dr. Marwan Shaikh explain resources patients and care partners can utilize to take advantage of financial assistance programs and Medicaid and how to optimize financial assistance resources.
How Can the Shortage of Hematologists for Sickle Cell Care Be Addressed?
Sickle cell disease patient advocate Carla Lewis and Maya Bloomberg explain improvements in process for sickle cell care and how patients and care providers can advocate for their best care.
How Can We Close the Gap of Mistrust in BIPOC Communities?
Dr. Marwan Shaikh shares key ways that SCD patients and providers can help work toward closing the gap of medical mistrust.
What Are Some Challenges of Finding a Cure for Sickle Cell Disease?
Dr. Marwan Shaikh and Maya Bloomberg explain obstacles for patients in sickle cell disease care, challenges to researchers in finding and refining cures, and how patients and others can help improve the possibilities of cures.
How Can SCD Warriors and Families Help in Novel Therapy Research?
Dr. Marwan Shaikh, Maya Bloomberg, and Carla Lewis explain ways that sickle cell patients and care partners can help advance sickle cell disease care, resources for locating clinical trials, and how to advocate for improved sickle cell care.
What Should SCD Warriors Know Before Joining a Clinical Trial?
Dr. Marwan Shaikh and Maya Bloomberg share about sickle cell patients who may benefit from clinical trials and why BIPOC representation is vital for optimal clinical trial results.
Lost in Transition, Optimizing Sickle Cell Disease Care
As part of ongoing efforts to expand sickle cell disease knowledge and to reduce health inequities, DHH hosted its first Sickle Cell Health Hub Huddle with sickle cell disease experts.
How Is Sickle Cell Research Using Gene Editing?
Maya Bloomberg defines gene editing versus gene therapy and explains gene editing research that is examining treatment advances for sickle cell patients.
Does Standard of Care Change for Adult Sickle Cell Warriors?
Dr. Marwan Shaikh and Maya Bloomberg explain the treatment that has been used as the sickle cell gold standard of care, newer treatment options, and an online resource for finding the latest SCD research information.
Questions to Ask When Transitioning to Adult Sickle Cell Care
Dr. Marwan Shaikh and Maya Bloomberg offer advice on questions to ask providers, online resources for locating sickle cell care, which specialists are trained in SCD, and the latest treatments to ensure your specialist is aware of.
Do Sickle Cell Pain Crises Increase or Decrease With Age?
Dr. Marwan Shaikh, Maya Bloomberg, and Carla Lewis, share challenges that young adult SCD patients may encounter with their care and offer advice for how patients can advocate for their best care.
What Health Issues Are Associated With Sickle Cell Disease?
Maya Bloomberg explains problems that can develop during pain episodes that sickle cell disease patients and their care providers should be aware of.
How Can Sickle Cell Warriors Smoothly Transition to Adult Care?
Maya Bloomberg shares care issues to be on the alert for and key concepts to discuss with pediatric sickle cell disease patients before they transition to adult care.
How Can the Community Help Increase Sickle Cell Disease Research Funding?
Dr. Seethal Jacob shares advice to help improve research funding for sickle cell disease and how patients can help improve SCD care.
How Can Experts Improve Stem Cell Transplants for Sickle Cell Patients?
Dr. Seethal Jacob shares potential transplant advances that are currently in clinical studies for increased transplant donor candidates and for improved treatments before and after transplants.
Are There Studies on Natural Remedies and Sickle Cell Disease?
Dr. Seethal Jacob explains results of a pre-clinical study on the use of plant extracts versus hydroxyurea in sickling of the blood and how studies could move forward for additional treatment options.
COVID-19 and Sickle Cell, How to Protect Yourself
Dr. Seethal Jacob shares scientific data about those being hospitalized for COVID-19 infection and what sickle cell patients and loved ones can do to protect against COVID complications.