Empowering Adolescents and Young Adults in the Transition From Pediatric to Adult Sickle Cell Care
What are barriers and solutions for transitioning sickle cell youth from pediatric to adult care? Dr. Titilope Fasipe shares barriers that she’s noticed for her patients and how to overcome them.
The Sickle Cell Struggle: Advocacy, Unity, and the Power of Community Collaboration
Sickle cell patients can be anywhere, but are there effective community-based strategies to help with psychosocial challenges? Dr. Titilope Fasipe and Jemela Williams share their perspectives.
Hope in the Face of Sickle Cell: Embracing Life Amidst Uncertainty
Pediatric sickle cell patients may encounter psychosocial barriers, but how can healthcare providers improve their support during this time? Dr. Titilope Fasipe discusses challenges and how to aid patients.
Beyond the ER: Innovative Approaches to Sickle Cell Pain Management
What sickle cell interventions have shown success in improving pain management and frequency of emergency care? Dr. Titilope Fasipe discusses pain issues and pain management strategies.
How Can Sickle Cell Providers Advocate for Equitable Diagnostics?
Maya Bloomberg shares how providers can assist with raising sickle cell education and awareness, screening recommendations, and increasing patient self-advocacy.
Sickle Cell Patient Turned Patient Navigator Shares Perspective
How has a sickle cell patient’s experience impacted his work as a patient navigator? Hear from sickle cell advocate John Masembe.
Young Adult Black Sickle Cell Patient Transitions to Adult Care
The sickle cell care transition from pediatric to adult care is a vulnerable time, so what can be done to help these patients? Hear from sickle cell advocates John Masembe and Jemela Williams.
Sickle Cell Disease Care Barriers and Building Solutions
What are sickle cell disease care barriers? What can we do to educate as well as bring awareness to current and future hematologists?
How Can We Combat Unconscious Bias in Sickle Cell Care?
What are some ways to combat unconscious bias in sickle cell care? Sickle cell advocates John Masembe and Jemela Williams share their perspectives.
Focal Segmental Glomerulosclerosis and Key Diagnostic Testing
What is focal segmental glomerulosclerosis (FSGS), and what should sickle cell patients know about the condition? Hear from hematology nurse practitioner Maya Bloomberg.
Diagnostic Testing Inequities | Impact of Social Determinants of Health for Sickle Cell Patients
How do social determinants of health impact diagnostic testing equity? Hear from sickle cell advocates John Masembe and Jemela Williams.
What Kind of Support Does the Sickle Cell Community Need?
Sickle cell patients need more support, but what kind of support will have the most impact? Hear from sickle cell advocates John Masembe and Jemela Williams.
Understanding the Bone Marrow Transplant Experience in Sickle Cell
What does the bone marrow transplant journey look like in sickle cell? What are the challenges? Hear from sickle cell advocates John Masembe and Jemela Williams.
Adolescent to Adult Sickle Cell Care | Key Advice for Patients
Are there specific tests and assessments to keep up with during the pediatric to adult transition? Hear from hematology nurse practitioner Maya Bloomberg.
Impact of Artificial Intelligence on Sickle Cell Tests
Maya Bloomberg shares how AI may impact sickle cell tests in the screening, diagnosis, and treatment of patients.
Sickle Cell Screening and Outcomes | Impact of Stigma and Discrimination
Maya Bloomberg shares her knowledge about disparities in sickle cell screening and care and solutions toward equity.
Hydroxyurea Use in Sickle Cell and Other Conditions
Maya Bloomberg explains the history of hydroxyurea use and how it can help in sickle cell care.
Importance of Diagnostic Equity for Sickle Cell Community
Maya Bloomberg discusses diagnostic equity, the prevalence of sickle cell, and ways that diagnostic equity and health outcomes can be improved.
What Should Sickle Cell Patients Know About Lab Test Ranges?
How are laboratory reference ranges determined as it relates to sickle cell? Hear from hematology nurse practitioner Maya Bloomberg.
COVID-19 and Sickle Cell, How to Protect Yourself
Dr. Seethal Jacob shares scientific data about those being hospitalized for COVID-19 infection and what sickle cell patients and loved ones can do to protect against COVID complications.