Jemela Williams

Social Media Community Manager
Health Equity Emissary Team Member

As a lifelong sickle cell warrior and patient advocate, Jemela Williams is deeply passionate about empowering individuals with sickle cell disease to live their best lives. Her personal journey with sickle cell anemia, which includes mental health, grief, and other chronic illnesses, have all fueled her commitment to raising awareness, advocating for better healthcare, and supporting fellow sickle cell warriors. 

Jemela has been featured in multiple articles and podcasts, sharing her experiences and insights to educate others about SCD. She also proudly participated in the Bluebird bio "Be the Spark" awareness campaign, advocating for transformative change in sickle cell disease treatment and care.

Jemela’s dedication to patient advocacy extends to her involvement with various organizations:

• Uriel E. Owens Sickle Cell Disease Association of the Midwest Board Member Sickle Cell Midwest)

• Community Leadership Council Member at National Pain Advocacy Center (NPAC)

• Sick Cells Ambassador

• Health-Related Stigma Research Advisory Board Member

• PROGRESS Study PEDB Patient Engagement Diversity Board Member (Sickle Cell Disease)

• SC3 Media Marketing Public Relations Committee

• Former Jackson County CASA – Court Appointed Child Advocate

  You can also find her at the following hashtags: #SickleCellLifeOfMemej, #thesicklecelllifeofmemej