Systemic Mastocytosis Hub

Systemic Mastocytosis Hub

Equity in Diagnostic Testing Overview

Systemic mastocytosis (SM) is a rare disease in which diagnostic testing disparities present itself in underdiagnosis*(**). SM is challenging to identify because of low prevalence, therefore comprehensive testing is crucial for optimal outcomes.

Key SM tests include:

  • Blood tests

  • Urine tests

  • Bone marrow biopsies

  • Skin biopsies

  • X-rays

  • Ultrasounds

  • Bone scans

  • CT scans

  • Genetic testing such as next-generation sequencing that can identify specific mutations that respond better to certain therapies

Programs

Featured Programs
How Can Laboratory Scientists Help With Equitable Care Delivery?
General Health
DHH Program, DHH Video, Brandy Gunsolus DCLS MLS ASCP CM, laboratory medicine, Dana Powell Baker, equitable care, equitable care delivery, lab values, ethnicity, health disparities, healthcare team, health equity
How Can Laboratory Scientists Help With Equitable Care Delivery?
General Health
DHH Program, DHH Video, Brandy Gunsolus DCLS MLS ASCP CM, laboratory medicine, Dana Powell Baker, equitable care, equitable care delivery, lab values, ethnicity, health disparities, healthcare team, health equity
General Health
DHH Program, DHH Video, Brandy Gunsolus DCLS MLS ASCP CM, laboratory medicine, Dana Powell Baker, equitable care, equitable care delivery, lab values, ethnicity, health disparities, healthcare team, health equity
What Are Issues and Solutions to Unconscious Bias in Interpreting Lab Values?
General Health
DHH Program, DHH Video, Brandy Gunsolus DCLS MLS ASCP CM, laboratory medicine, Dana Powell Baker, unconscious bias, lab values, interpreting lab values, blood transfusion, lower socioeconomic status, LGBT community, HIV test, stereotypes, HCV antibody
What Are Issues and Solutions to Unconscious Bias in Interpreting Lab Values?
General Health
DHH Program, DHH Video, Brandy Gunsolus DCLS MLS ASCP CM, laboratory medicine, Dana Powell Baker, unconscious bias, lab values, interpreting lab values, blood transfusion, lower socioeconomic status, LGBT community, HIV test, stereotypes, HCV antibody
General Health
DHH Program, DHH Video, Brandy Gunsolus DCLS MLS ASCP CM, laboratory medicine, Dana Powell Baker, unconscious bias, lab values, interpreting lab values, blood transfusion, lower socioeconomic status, LGBT community, HIV test, stereotypes, HCV antibody
What’s Happening to Ensure Lab Test Accuracy for Diverse Populations?
General Health
DHH Program, DHH Video, Brandy Gunsolus DCLS MLS ASCP CM, laboratory medicine, Dana Powell Baker, lab test accuracy, diverse populations, laboratory testing methodology
What’s Happening to Ensure Lab Test Accuracy for Diverse Populations?
General Health
DHH Program, DHH Video, Brandy Gunsolus DCLS MLS ASCP CM, laboratory medicine, Dana Powell Baker, lab test accuracy, diverse populations, laboratory testing methodology
General Health
DHH Program, DHH Video, Brandy Gunsolus DCLS MLS ASCP CM, laboratory medicine, Dana Powell Baker, lab test accuracy, diverse populations, laboratory testing methodology
Do Racial and Ethnic Groups Show Differences in Drug Metabolism Enzymes?
General Health
DHH Program, DHH Video, Brandy Gunsolus DCLS MLS ASCP CM, laboratory medicine, cytochrome P450, drug metabolism, drug metabolism enzymes, racial ethnic groups, racial groups, ethnic groups, genetic variations, African American, Asian American, Hispanic American, Dana Powell Baker
Do Racial and Ethnic Groups Show Differences in Drug Metabolism Enzymes?
General Health
DHH Program, DHH Video, Brandy Gunsolus DCLS MLS ASCP CM, laboratory medicine, cytochrome P450, drug metabolism, drug metabolism enzymes, racial ethnic groups, racial groups, ethnic groups, genetic variations, African American, Asian American, Hispanic American, Dana Powell Baker
General Health
DHH Program, DHH Video, Brandy Gunsolus DCLS MLS ASCP CM, laboratory medicine, cytochrome P450, drug metabolism, drug metabolism enzymes, racial ethnic groups, racial groups, ethnic groups, genetic variations, African American, Asian American, Hispanic American, Dana Powell Baker
How Can Racial and Ethnic Differences Be Reflected Accurately in Clinical Practice?
General Health
DHH Program, DHH Video, Brandy Gunsolus DCLS MLS ASCP CM, diagnostic testing, laboratory medicine, laboratory reference ranges, racial differences, ethnic differences, genetic differences, medical laboratory scientists, clinical practice, Dana Powell Baker
How Can Racial and Ethnic Differences Be Reflected Accurately in Clinical Practice?
General Health
DHH Program, DHH Video, Brandy Gunsolus DCLS MLS ASCP CM, diagnostic testing, laboratory medicine, laboratory reference ranges, racial differences, ethnic differences, genetic differences, medical laboratory scientists, clinical practice, Dana Powell Baker
General Health
DHH Program, DHH Video, Brandy Gunsolus DCLS MLS ASCP CM, diagnostic testing, laboratory medicine, laboratory reference ranges, racial differences, ethnic differences, genetic differences, medical laboratory scientists, clinical practice, Dana Powell Baker
How Is Race Used in Laboratory Medicine Practices?
General Health
DHH Program, DHH Video, Brandy Gunsolus DCLS MLS ASCP CM, diagnostic testing, race, eGFR, creatinine level, kidney disease, African American population, ethnicity, race-based corrections, racially motivated research
How Is Race Used in Laboratory Medicine Practices?
General Health
DHH Program, DHH Video, Brandy Gunsolus DCLS MLS ASCP CM, diagnostic testing, race, eGFR, creatinine level, kidney disease, African American population, ethnicity, race-based corrections, racially motivated research
General Health
DHH Program, DHH Video, Brandy Gunsolus DCLS MLS ASCP CM, diagnostic testing, race, eGFR, creatinine level, kidney disease, African American population, ethnicity, race-based corrections, racially motivated research
How Can Laboratory Medicine Practices Be Corrected More Quickly?
General Health
DHH Program, DHH Video, Brandy Gunsolus DCLS MLS ASCP CM, diagnostic testing, eGFR, race-based, ethnicity-based calculators, lab reports, laboratory medicine, laboratory medicine practices
How Can Laboratory Medicine Practices Be Corrected More Quickly?
General Health
DHH Program, DHH Video, Brandy Gunsolus DCLS MLS ASCP CM, diagnostic testing, eGFR, race-based, ethnicity-based calculators, lab reports, laboratory medicine, laboratory medicine practices
General Health
DHH Program, DHH Video, Brandy Gunsolus DCLS MLS ASCP CM, diagnostic testing, eGFR, race-based, ethnicity-based calculators, lab reports, laboratory medicine, laboratory medicine practices
Can Systemic Mastocytosis Increase Risk of Anaphylactic Shock?
Systemic Mastocytosis
DHH Program, DHH Video, Brandy Gunsolus DCLS MLS ASCP CM, systemic mastocytosis, inflammatory response, anaphylactic shock risks, insect stings, exercise, medications, insect bites
Can Systemic Mastocytosis Increase Risk of Anaphylactic Shock?
Systemic Mastocytosis
DHH Program, DHH Video, Brandy Gunsolus DCLS MLS ASCP CM, systemic mastocytosis, inflammatory response, anaphylactic shock risks, insect stings, exercise, medications, insect bites
Systemic Mastocytosis
DHH Program, DHH Video, Brandy Gunsolus DCLS MLS ASCP CM, systemic mastocytosis, inflammatory response, anaphylactic shock risks, insect stings, exercise, medications, insect bites
Are There Diagnostic Testing Inequities in Rural Areas?
General Health
DHH Program, DHH Video, Brandy Gunsolus DCLS MLS ASCP CM, diagnostic testing, health testing disparities, rural areas, rural communities, heart cath lab, infectious diseases
Are There Diagnostic Testing Inequities in Rural Areas?
General Health
DHH Program, DHH Video, Brandy Gunsolus DCLS MLS ASCP CM, diagnostic testing, health testing disparities, rural areas, rural communities, heart cath lab, infectious diseases
General Health
DHH Program, DHH Video, Brandy Gunsolus DCLS MLS ASCP CM, diagnostic testing, health testing disparities, rural areas, rural communities, heart cath lab, infectious diseases
Diagnostics Decoded | Lab Values and Ethnicity
General Health
DHH Program, DHH Video, Brandy Gunsolus DCLS MLS ASCP CM, diagnostic testing, LGBTQIA health testing, LGBTQIA community, health testing disparities, African Americans, lab testing values, ethnicity, drug metabolism, eGFR, race-based corrections, diagnostics decoded, Dana Powell Baker
Diagnostics Decoded | Lab Values and Ethnicity
General Health
DHH Program, DHH Video, Brandy Gunsolus DCLS MLS ASCP CM, diagnostic testing, LGBTQIA health testing, LGBTQIA community, health testing disparities, African Americans, lab testing values, ethnicity, drug metabolism, eGFR, race-based corrections, diagnostics decoded, Dana Powell Baker
General Health
DHH Program, DHH Video, Brandy Gunsolus DCLS MLS ASCP CM, diagnostic testing, LGBTQIA health testing, LGBTQIA community, health testing disparities, African Americans, lab testing values, ethnicity, drug metabolism, eGFR, race-based corrections, diagnostics decoded, Dana Powell Baker
Solutions for Diagnostic Testing Issues for Transgender Patients
Systemic Mastocytosis
DHH Program, DHH Video, Brandy Gunsolus DCLS MLS ASCP CM, diagnostic testing, LGBTQIA health testing, LGBTQIA community, health testing disparities, sex hormones, hormone replacement therapy, transgender, trangender testing values
Solutions for Diagnostic Testing Issues for Transgender Patients
Systemic Mastocytosis
DHH Program, DHH Video, Brandy Gunsolus DCLS MLS ASCP CM, diagnostic testing, LGBTQIA health testing, LGBTQIA community, health testing disparities, sex hormones, hormone replacement therapy, transgender, trangender testing values
Systemic Mastocytosis
DHH Program, DHH Video, Brandy Gunsolus DCLS MLS ASCP CM, diagnostic testing, LGBTQIA health testing, LGBTQIA community, health testing disparities, sex hormones, hormone replacement therapy, transgender, trangender testing values
Diagnostic Testing and Impact on LGBTQIA Community
General Health
DHH Program, DHH Video, Brandy Gunsolus DCLS MLS ASCP CM, diagnostic testing, LGBTQIA health testing, LGBTQIA disparities, LGBTQIA community, health testing disparities, sex chromosomes, X chromosome, Y chromosome, HIV prevention
Diagnostic Testing and Impact on LGBTQIA Community
General Health
DHH Program, DHH Video, Brandy Gunsolus DCLS MLS ASCP CM, diagnostic testing, LGBTQIA health testing, LGBTQIA disparities, LGBTQIA community, health testing disparities, sex chromosomes, X chromosome, Y chromosome, HIV prevention
General Health
DHH Program, DHH Video, Brandy Gunsolus DCLS MLS ASCP CM, diagnostic testing, LGBTQIA health testing, LGBTQIA disparities, LGBTQIA community, health testing disparities, sex chromosomes, X chromosome, Y chromosome, HIV prevention
Does Laboratory Medicine Worsen Health Disparities Unintentionally?
General Health
DHH Program, DHH Video, diagnostics decoded, marginalized communities, health disparities, laboratory medicine, health economics, health algorithms
Does Laboratory Medicine Worsen Health Disparities Unintentionally?
General Health
DHH Program, DHH Video, diagnostics decoded, marginalized communities, health disparities, laboratory medicine, health economics, health algorithms
General Health
DHH Program, DHH Video, diagnostics decoded, marginalized communities, health disparities, laboratory medicine, health economics, health algorithms
How Can We Address Diagnostic Inequities in Laboratory Practices?
General Health
DHH Program, DHH Video, diagnostics decoded, marginalized communities, Asian American community, diagnostic inequities
How Can We Address Diagnostic Inequities in Laboratory Practices?
General Health
DHH Program, DHH Video, diagnostics decoded, marginalized communities, Asian American community, diagnostic inequities
General Health
DHH Program, DHH Video, diagnostics decoded, marginalized communities, Asian American community, diagnostic inequities
What Is a Lab Test Reference Range and How Are They Determined?
General Health
DHH Program, DHH Video, Brandy Gunsolus DCLS MLS ASCP CM, lab test reference ranges, diagnostic testing, thyroid, TSH
What Is a Lab Test Reference Range and How Are They Determined?
General Health
DHH Program, DHH Video, Brandy Gunsolus DCLS MLS ASCP CM, lab test reference ranges, diagnostic testing, thyroid, TSH
General Health
DHH Program, DHH Video, Brandy Gunsolus DCLS MLS ASCP CM, lab test reference ranges, diagnostic testing, thyroid, TSH
What Is the Impact of Unconscious Bias on Laboratory Diagnostics and Health Outcomes?
General Health
DHH Program, DHH Video, diagnostics decoded, health disparities, diagnostic testing, unconscious bias, Healthy People 2030, white gay men, marginalized communities, diabetes, HIV
What Is the Impact of Unconscious Bias on Laboratory Diagnostics and Health Outcomes?
General Health
DHH Program, DHH Video, diagnostics decoded, health disparities, diagnostic testing, unconscious bias, Healthy People 2030, white gay men, marginalized communities, diabetes, HIV
General Health
DHH Program, DHH Video, diagnostics decoded, health disparities, diagnostic testing, unconscious bias, Healthy People 2030, white gay men, marginalized communities, diabetes, HIV
Systemic Mastocytosis | Appearance in Various Skin Tones and Genders
Systemic Mastocytosis
DHH Program, DHH Video, Brandy Gunsolus DCLS MLS ASCP CM, systemic mastocytosis, skin spots, yellow spots, brown spots, brown skin, darker skin
Systemic Mastocytosis | Appearance in Various Skin Tones and Genders
Systemic Mastocytosis
DHH Program, DHH Video, Brandy Gunsolus DCLS MLS ASCP CM, systemic mastocytosis, skin spots, yellow spots, brown spots, brown skin, darker skin
Systemic Mastocytosis
DHH Program, DHH Video, Brandy Gunsolus DCLS MLS ASCP CM, systemic mastocytosis, skin spots, yellow spots, brown spots, brown skin, darker skin
What Is Systemic Mastocytosis and How Is It Diagnosed?
Systemic Mastocytosis
DHH Program, DHH Video, Brandy Gunsolus DCLS MLS ASCP CM, systemic mastocytosis, mast cells, white cell differential, CBC test, liver function
What Is Systemic Mastocytosis and How Is It Diagnosed?
Systemic Mastocytosis
DHH Program, DHH Video, Brandy Gunsolus DCLS MLS ASCP CM, systemic mastocytosis, mast cells, white cell differential, CBC test, liver function
Systemic Mastocytosis
DHH Program, DHH Video, Brandy Gunsolus DCLS MLS ASCP CM, systemic mastocytosis, mast cells, white cell differential, CBC test, liver function
Improving Visibility of Laboratory Scientists and Healthcare Professionals
General Health
DHH Program, DHH Video, diagnostics decoded, health disparities, diagnostic testing, health laboratory research, laboratory scientists, Marilyn Bibbs Freeman, PhD, M (ASCP), Dr. Marilyn Bibbs Freeman
Improving Visibility of Laboratory Scientists and Healthcare Professionals
General Health
DHH Program, DHH Video, diagnostics decoded, health disparities, diagnostic testing, health laboratory research, laboratory scientists, Marilyn Bibbs Freeman, PhD, M (ASCP), Dr. Marilyn Bibbs Freeman
General Health
DHH Program, DHH Video, diagnostics decoded, health disparities, diagnostic testing, health laboratory research, laboratory scientists, Marilyn Bibbs Freeman, PhD, M (ASCP), Dr. Marilyn Bibbs Freeman
Enhancing Health Laboratory Research Through DEIA
General Health
DHH Program, DHH Video, diagnostics decoded, health disparities, diagnostic testing, DEIA, health laboratory research, Marilyn Bibbs Freeman, PhD, M (ASCP), Dr. Marilyn Bibbs Freeman
Enhancing Health Laboratory Research Through DEIA
General Health
DHH Program, DHH Video, diagnostics decoded, health disparities, diagnostic testing, DEIA, health laboratory research, Marilyn Bibbs Freeman, PhD, M (ASCP), Dr. Marilyn Bibbs Freeman
General Health
DHH Program, DHH Video, diagnostics decoded, health disparities, diagnostic testing, DEIA, health laboratory research, Marilyn Bibbs Freeman, PhD, M (ASCP), Dr. Marilyn Bibbs Freeman
Unconscious Bias in Healthcare | Collaborations to Raise Awareness
General Health
DHH Program, DHH Video, diagnostics decoded, health disparities, diagnostic testing, unconscious bias, DEIA, Marilyn Bibbs Freeman, PhD, M (ASCP), Dr. Marilyn Bibbs Freeman
Unconscious Bias in Healthcare | Collaborations to Raise Awareness
General Health
DHH Program, DHH Video, diagnostics decoded, health disparities, diagnostic testing, unconscious bias, DEIA, Marilyn Bibbs Freeman, PhD, M (ASCP), Dr. Marilyn Bibbs Freeman
General Health
DHH Program, DHH Video, diagnostics decoded, health disparities, diagnostic testing, unconscious bias, DEIA, Marilyn Bibbs Freeman, PhD, M (ASCP), Dr. Marilyn Bibbs Freeman
LGBTQIA Health Testing and Outcomes | Solutions Toward Equity
General Health
DHH Program, DHH Video, Brandy Gunsolus DCLS MLS ASCP CM, diagnostic testing, LGBTQIA health testing, LGBTQIA disparities
LGBTQIA Health Testing and Outcomes | Solutions Toward Equity
General Health
DHH Program, DHH Video, Brandy Gunsolus DCLS MLS ASCP CM, diagnostic testing, LGBTQIA health testing, LGBTQIA disparities
General Health
DHH Program, DHH Video, Brandy Gunsolus DCLS MLS ASCP CM, diagnostic testing, LGBTQIA health testing, LGBTQIA disparities
How Can Bias Against Overweight Patients Be Lessened?
General Health
DHH Program, DHH Video, Brandy Gunsolus DCLS MLS ASCP CM, diagnostic testing, overweight patients, health testing
How Can Bias Against Overweight Patients Be Lessened?
General Health
DHH Program, DHH Video, Brandy Gunsolus DCLS MLS ASCP CM, diagnostic testing, overweight patients, health testing
General Health
DHH Program, DHH Video, Brandy Gunsolus DCLS MLS ASCP CM, diagnostic testing, overweight patients, health testing
Diagnostic Testing | How Providers Can Help Empower Patients
General Health
DHH Program, DHH Video, Brandy Gunsolus DCLS MLS ASCP CM, sponsored genetic panels, diagnostic testing
Diagnostic Testing | How Providers Can Help Empower Patients
General Health
DHH Program, DHH Video, Brandy Gunsolus DCLS MLS ASCP CM, sponsored genetic panels, diagnostic testing
General Health
DHH Program, DHH Video, Brandy Gunsolus DCLS MLS ASCP CM, sponsored genetic panels, diagnostic testing
What Is a Medical Laboratory Scientist?
General Health
DHH Program, DHH Video, Brandy Gunsolus DCLS MLS ASCP CM, medical laboratory scientist, medical testing
What Is a Medical Laboratory Scientist?
General Health
DHH Program, DHH Video, Brandy Gunsolus DCLS MLS ASCP CM, medical laboratory scientist, medical testing
General Health
DHH Program, DHH Video, Brandy Gunsolus DCLS MLS ASCP CM, medical laboratory scientist, medical testing
What Is the Impact of Artificial Intelligence on Laboratory Testing?
General Health
DHH Program, DHH Video, Brandy Gunsolus DCLS MLS ASCP CM, diagnostic testing, artificial intelligence, molecular genetics
What Is the Impact of Artificial Intelligence on Laboratory Testing?
General Health
DHH Program, DHH Video, Brandy Gunsolus DCLS MLS ASCP CM, diagnostic testing, artificial intelligence, molecular genetics
General Health
DHH Program, DHH Video, Brandy Gunsolus DCLS MLS ASCP CM, diagnostic testing, artificial intelligence, molecular genetics
Diagnostic Equity and Its Importance in Patient Care
General Health
DHH Program, DHH Video, Brandy Gunsolus DCLS MLS ASCP CM, medical laboratory science, diagnostic equity, inherent biases
Diagnostic Equity and Its Importance in Patient Care
General Health
DHH Program, DHH Video, Brandy Gunsolus DCLS MLS ASCP CM, medical laboratory science, diagnostic equity, inherent biases
General Health
DHH Program, DHH Video, Brandy Gunsolus DCLS MLS ASCP CM, medical laboratory science, diagnostic equity, inherent biases
How Do Healthcare Disparities Impact Diagnosis?
General Health
DHH Program, DHH Video, Brandy Gunsolus DCLS MLS ASCP CM, healthcare disparities
How Do Healthcare Disparities Impact Diagnosis?
General Health
DHH Program, DHH Video, Brandy Gunsolus DCLS MLS ASCP CM, healthcare disparities
General Health
DHH Program, DHH Video, Brandy Gunsolus DCLS MLS ASCP CM, healthcare disparities
What Is a Complete Blood Count (CBC) Test?
General Health
DHH Program, Kyle Riding PhD MLS ASCP, complete blood count, CBC, lab tests, platelets, red blood cells, white blood cells, hemoglobin, hematocrit, DHH Video
What Is a Complete Blood Count (CBC) Test?
General Health
DHH Program, Kyle Riding PhD MLS ASCP, complete blood count, CBC, lab tests, platelets, red blood cells, white blood cells, hemoglobin, hematocrit, DHH Video
General Health
DHH Program, Kyle Riding PhD MLS ASCP, complete blood count, CBC, lab tests, platelets, red blood cells, white blood cells, hemoglobin, hematocrit, DHH Video
Unnecessary Genetic Tests and Dealing With Insurance
General Health
DHH Program, Brandy Gunsolus DCLS MLS ASCP CM, Kyle Riding PhD MLS ASCP, genetic tests, lab tests, health insurance, DHH Video
Unnecessary Genetic Tests and Dealing With Insurance
General Health
DHH Program, Brandy Gunsolus DCLS MLS ASCP CM, Kyle Riding PhD MLS ASCP, genetic tests, lab tests, health insurance, DHH Video
General Health
DHH Program, Brandy Gunsolus DCLS MLS ASCP CM, Kyle Riding PhD MLS ASCP, genetic tests, lab tests, health insurance, DHH Video

Resources

HubKit

Designed with health equity in mind, HubKits are packed with expert knowledge that give you the information necessary to confidently share in decision-making with their health care providers. Download a HubKit to equip yourself for an equitable conversation with your care team.

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Sources

*Systemic Mastocytosis. Mayo Clinic website. Accessed March 16, 2023. https://www.mayoclinic.org/diseases-conditions/systemic-mastocytosis/diagnosis-treatment/drc-20450478

**Daniel DeAngelo, Sa Wang. Advanced Systemic Mastocytosis: Expert Insight into Epidemiology, Diagnosis, and Treatment. OncLive website. Accessed March 16,, 2023. https://www.onclive.com/view/advanced-systemic-mastocytosis-expert-insight-into-epidemiology-diagnosis-and-treatment

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